• Alyssa's Angels

    Banding together to find a cure for cystic fibrosis!
    It is with great sorrow that we must announce that Alyssa gained her wings on January 23, 2013.  We have all been blessed by knowing her and know she is finally breathing easy.  May God bless you Lissy and thank you for everything you did for so many!
    Check out our videos below!
    ~Taking Steps to Cure Cystic Fibrosis~

    (Click an item for more information)

    What is Cystic Fibrosis?
    Cystic fibrosis (CF) is a life-threatening genetic disease that affects 30,000 children and young adults in the United States and 70,000 worldwide. CF is caused by a defective protien that allows thick mucus to build up in the lungs and pancreas. As a result, CF patients suffer from breathing problems and lung infections as well as a inability to digest food properly. Research and care supported by the Cystic fibrosis Foundation is making a huge difference in extending the quality of life for those with CF. However, we continue to lose precious lives to CF every day. That's why your help is needed now more than ever to ensure that a cure is found sooner - rather than later. To learn more about CF and the CF Foundation, visit www.cff.org.

    back to top

    Who is Alyssa?


    Alyssa is a 16 year old who was diagnosed with Cystic Fibrosis (CF) when she was one month old. CF is a genetic disease that affects her lungs and pancreas. She has lived everyday of her life with the responsibilities and the side affects of this life-threatening disease. Her daily routine includes 36 pills, four breathing treatments through a nebulizer, three half-hour sessions of physical therapy, 1,500 calories through a feeding tube every night, oxygen treatment 24/7, and a BiPAP machine when she sleeps. At the end of August, Alyssa was officially listed on the organ transplant list and moved to St. Louis to await her new lungs. On September 16, 2010, Alyssa's wait was over as she received her new lungs! She has finally had her wish come true to just breathe!
    Unfortunately, Alyssa's battle with CF ended on January 23, 2013.  We have all been blessed knowing her and know she is breathing easier now.
    Everyday Alyssa fought to stay alive. The worst part for her was that there is NO CURE! However, that does not stop her friends and family from raising funds and educating the public about CF. Alyssa wished to one day see no other child suffer from CF. Everything you purchase through the Alyssa's Angels goes to the Cystic Fibrosis Foundation and its fight to find a cure for the over 70,000 people who struggle with CF everyday.

    Who are Alyssa's Angels?
    In our district, we have several families, students and staff directly affected by cystic fibrosis. Alyssa's Angels is an organization run by caring students throughout Hobart, Indiana to help raise awareness and money for cystic fibrosis. Throughout the year we have been talking to the public about CF and involving them in creative fund-raising events in memory of our friend, Alyssa. Since it was founded, the Angels have raised over $25,000!

    back to top



    If you want to help in any way that would be wonderful!


    donate to my causeAlthough this year's walk is over, you can still donate to the CFF by clicking on the icon to the left.
    There is still time to join the fight for a cure.
    Here are other sites you can visit to directly help CF patients:

    Last spring Alyssa was able to make one of her dreams come true by participating in Hobart High School's prom. You can read her story here:
    Alyssa Prom

    If you would like to get involved in other ways or have more ideas on how we can reach our goal, please contact us at eric@AlyssasAngelsCF.org. Together, we can all make a difference in the lives of those with cystic fibrosis, including those in Hobart! Thank you for supporting the mission of the CF Foundation and Alyssas Angels! Here's to hoping one day CF stands for Cure Found!

    back to top

    Cystic Fibrosis On The Web:

    CFF Logo - click for home page

    Alyssa's Angels would like to send a special thank you to everyone who has supported us!
    back to top
Last Modified on January 26, 2013